Disability studies — Victorian; women’s perspectives

Adam (Hugh Dancy in key role): a movie about an autistic young man

Dear friends and readers,

There’s a major area completely undiscovered – as it were — in Victorian literature. A way of making genuinely humane sense out of all sorts of works. We need to stop (first of all, a minimum first) stop using terms like “cripples” or “monstrous” as these feed into misunderstanding of what the experience of disability is to the person and those immediately around him or her, who live with and next to them.

To answer a request to cite a few such characters and comment on Victorian characters already cited:

The first shot of la Signora Neroni (Susan Hampshire): Mrs Proudie asks, “what’s so special about this lady beyond her preposterous name?” Rickman as Slope replies: “She can’t walk.”

Madame Neroni in Trollope’s Barchester Towers is not a monstrous figure, but her crippled state is described as grotesque. She refuses to try to walk is to do that would expose this aspect of her body. If we move away from the word “cripples” and an insistence on physical disability as the key to disability, Elizabeth Gaskell has quite a number of disabled characters across her oeuvre, especially the short stories (a number of which are gothic in feel). It’s mostly mental disability and she shows real empathy for the disabled character and her or his caretaker, mostly women. By contrast, there’s Eliot’s really cruel Lifted Veil where a “mentally retarded” young man (whom today would be labelled low-functioning autistic) is treated with horror, as an unendurable mischievously savage burden. I would count Tarchetti’s Fosca as an Italian Victorian gothic novella — in the modern translation by Lawrence Venuti it’s retitled Passion, the influence of Sondheim’s musical-opera.

It doesn’t take much to see many of the characters in gothic mysteries and crime stories as disabled people stigmatized as “other.” A reading of recent disability studies might open up a whole new area of humane investigation from this point of view, and this has been already begun. An issue of Journal of Literary & Cultural Disability Studies — 6.2 (2012) — is dedicated to disability studies. The central point is made that disability is partly in the eye of the society who defines a series of traits as disability and then sees the person with these as “others”; then the purpose of the issue is to explore how disability is presented in literature. There are essays on “Late Victorian Gothic,” disability in romance, disability in crime and mystery novels.

The claim is persuasively made that crime and mystery novels have often centered on disabled people seen as villains, freaks, or the detective him or herself (mentally different you see). This kind of insight is fueling the new British Sherlock, arguably both Martin Freeman and Bernard Cumberbatch play high-functioning autistic or Aspergers characters who find deep friendship and a metier in helping other outside the cultural norm.

First shot of Dr Watson (Martin Freeman) home from war

Moving slightly away from Victorian texts, it’s argued in these essays that there are far more openly disabled characters in popular fiction than ever before, but the question is whether there has been really a development of understanding or empathy or it’s a reinforcing voyeurism in the service of enforcing normalcy. I know everyone is tired of hearing of Downton Abbey, but the presence of a character like Mr Bates is part of this new openness. What’s remarkable about Gaskell for example is by the end of her presentation the central characters have not been re-coopted into conventional patterns; they are not made “all well.”And to give Fellowes his due for once, Mr Bates is not co-opted back into “all well.” He remains outside the “norm” with his menacing dignity. The actor, Brendan Coyle, was given a central role in the film adaptation of Gaskell’s Cranford Chronicles.

I suggest a study of Emily Bronte’s Wuthering Heights from the point of disability studies (her verse too) might open whole new points of view on Heathcliff and Emily Bronte herself, the occasional half-hysterical violence of that book, the apartness of her poetry and various stories about Emily herself. Isabella Linton Heathcliff may well be a portrait of a woman unable to cope with social demands, and reacting grotesquely.

There’s also Fictions of Affliction by Martha Stoddard Holmes: her figures in include Madame Neroni, Dickens’s Jenny Wren (Our Mutual Friend), Tiny Tim, Wilkie Collins’s Lucy Finch she also studies Henry Mayhew’s interviews with disabled street vendors; autobiographical writings of Harriet Martineau and John Kitto, both deaf; and biographies of two public figures who were blind, the postmaster general Henry Fawcett and the disabled-rights activist Elizabeth Gilbert.

Contemporary illustration of Dickens’s character by Marcus Stone

Holmes is said to be interested in the melodramatic way most of these figures are presented; it’s an emotional and moral, not a medical and social struggle. Thinking about this, for Madame Neroni I would say it is a social struggle. For example, her decision not to be seen walking, the way she re-interprets what happened during her marriage. She’s not presented melodamatically either. Not that I am arguing Trollope’s portrait is of a 20th or 21st century enlightened sort, but he does bring in that she was physically abused by her husband.

Though not on Victorian literature, the insights in Rosemarie Garland Thomson: Extraordinary Bodies: Figuring disability in American literature may be used for Victorian literature.

Deafness is also often brought up as a central “type” of disability — partly because of the strong self-advocacy by the deaf, & I suggest Leonard Davis’s Enforcing Normalcy ought to inform any work done in this area; its subtitle Disability, Deafness, and the Body brings out its central focus on deafness. One of the chapters is on the first recording and understanding of deafness as a disability (not a monstrous irreversible condition) in the 18th century; this revolutionary change began in our enlightenment and its work has never been wholly undone. Another chapter makes Quasimodo a central figure.

From Charles Laughton’s brilliant performance in The Hunchback of Notre Dame

Going back in time a century, Oliver Sacks’s Seeing Voices also has a long eye-opening chapter on individual courageous and insightful 18th century philosophes who developed and taught sign language to deaf people, miraculously it was thought at first, turning them from imbeciles into functioning members of society — by those who would let them function. Sacks goes into the first schools for the dear, unfortunately all too quickly in the early 19th century an attempt was made to enforce talking on the deaf in such schools, to take away from them their sign language, to beat them into submission even. One of the most moving accounts of seeing the change in deaf people once they are treated as human beings like ourselves with another way of communicating is found at the close of Samuel Johnson’s Journey to the Western Islands writes: if he that speaks looks towards them, and modifies his organs by distinct and full utterance, they know so well what is spoken, that it is an expression scarcely figurative to say, they hear with the eye … It was pleasing to see one of the most [hitherto] desperate of human calamaties capable of so much help.

I’ve not published any conventional articles on this for Victorian studies. It would take such work for me — partly because I’d have to really dig into Gaskell. She seems to me a rare spirit in the Victorian period to show sympathy, but to be accurate, her empathy is with the care-taking women. One limitation of her gothic stories is she tends to show sympathy simply for the care-taker and we see the disabled person as violent or sullen from afar; a rare instance of one of her attempts at a disabled perspecive is Lady Ludlow’s Story where the story is told by Margaret Dawson; however, soon after the narrative begins and not until we get near to the end are we reminded our narrator is a crippled girl on a couch.

I also dream of writing a study of the Poldark novels and Daphne DuMaurier’s King’s General. Placed in the 17th century civil war, the latter’s about a heroine crippled from a fall from a horse: DuMaurier said she began it when she saw near Menabillies (her great house) a home-made wooden wheel chair from the later 17th century in a barn.

This would take me back to the eighteenth century.

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Frida Kahlo, self-portrait with doctor

Thinking about Gaskell’s approach, disabilities affect women centrally as care-takers and as disabled. I’ve now gotten myself 3 books on disability studies in the humanities, two wholly devoted to how disabilities affect women, one of which I’ve begun: Michelle Fine and Adrienne Asche’s collection: Women with Disabilities. See Fine’s Disruptive Voices: Fine is the only person I’ve read to do justice to the class bias that ostracizes women who are raped when they come into clinics for help.A little from the introduction.

Because of the way society is structured, women experience disabilities much worse than men, and are much more ignored — the two go together, experienced much more excruciatingly in the area of sexual experience, so crucial to women’s lives. . I now have statistics and essays arguing what I’ve long felt to be so: the only reason it’s said more men are autistic is people care so much more about men not getting jobs or “doing well” socially; women need only be married off and have babies; plus people are more ashamed of reading women than reading men. A reading man might become a scientist, a professor, a lawyer, what is the use of a reading woman?

Why has there been little work done among feminists for women with disabilities? shamelessly, one female academic said: such studies would “reinforce traditional stereotypes of women in need, dependent, perhaps passive.” (Can’t have that.) I’ve just begun the essay in the volume on friendship between women one of whom has disabilities and the other not.

How few the conversations with people about disabilities and how even then when confronted with an individual there’s a turning away and intense discomfort, a desire not to have the burden, fear of contagion: you’ll catch it, you too will be ostracized. Disabled characters, open and disguised, are found among classic children’s books, more often than you might suppose.

One of Yvette’s favorite books: E. B. White’s The Trumpet of the Swan: a mute swan carries a trumpet and writing slate

Two further well-known texts include Elizabeth Spencer’s Light in the Piazza (made into a musical): the daughter is autistic. Lucy Greary’s Autobiography of a Face.

I’ve only begun Women with Disabilities but already the texts bring home to me aspects of a set of texts I’ve been studying for over two years now: Austen’s letters and the experience of discussing these with other people. Again and again I have to watch people continue to misread the emphases in these letters and ignore say Jane’s relationship with Martha Lloyd. Insist that she didn’t marry was a default option not a preference. Ignore the very real peculiarities in her character.

Recently I’ve added and compared Frances Burney D’Arblay’s life-writing and found some aspects of her compulsion to write come out of her disabilities as a child. But her life-writing is not as useful as Austen’s — she hides her disabilities since much is self-praising fictionalizing: she makes herself the central heroine of romances, the adulated, the envied, from George III’s madness to Hastings’ trial. It’s rather in her third novel, Camilla, where one of her two heroines, Eugenia, is lamed and her face disfigured early in the novel that we get an early rare example of empathy for a disabled woman in early literature: what happens to her: Eugenia ends up married to an abusive man.

For studying disability as such (not in literature) I’d much prefer to write about life-writings than novels

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How did I come to write the above? whom am I speaking to?

On the large academic literary listserv, Victoria, there had appeared a query where for a second time someone requested examples of “cripples” in a disquieting way. The person requested “gothic images of cripples” and used the word “monstrous” of such a character without any sense that she (or he) was treating a whole class of people as obvious freaks, taking aboard as it were what one would have hoped in such a place would be an outdated attitude.

I waited a while and when no response beyond that of listing such supposed characters emerged, which then morphed into citing “deaf” characters, I sent a posting which was at first rejected or over-looked as insufficiently Victorian. A little rewriting enabled it to go through the next day and then off-list I got a number of thank yous, remarks about how slow or small has been the progress of understanding of people with disabilities,and descriptions of experiences, that I decided to put the above posting on line to reach more people in the form of a continuation of a blog I wrote about a debate in articles in a humanities journal which covers popular literature as well as disabilities: is the increase in depiction of characters with disabilities creating real understanding or effective help for real people with disabilities? I asked how far fandoms prevent such growth in sympathy and how far authors and film-makers found themselves pressured into creating alienating depictions or enforcing normalcy.

And I discussed the dramatization of the experiences of characters with disabilities in the last 5 of the Poldark novels and Downton Abbey.

The third shot of Mr Bates (Brendan Coyle, the first two show his face in the window of a train arriving at Downton, !:1)

The first time a startlingly prejudiced posting was put on Victoria I answered it too excitedly, but if I could find that posting, I’d put here on this blog now too.

Ellen